“She started off being able to do most things and then by the time she was six, she could no longer feed herself,” she said.
Government funding for childhood dementia research is 20 time slower than it is for childhood cancer. Source: AAP / Jeff Miller
“Then by the time she was eight, her voice had gone. She had no words, nothing, but then – for a little while – then it came back. We found skills come and go.”
Thousands of Australian children live with dementia
“You’re just watching your child slip away. I think that we grieve every day while she is still here. Because we know she’s going, and we try to keep her as strong as possible, so that she will be here longer,” Ms Lorenz said.
“We’re calling for increased funding into research, into improvements into the care and support services that are available to families – because we know the services that are there now are not meeting their needs. And the support that they require is quite immense.”